Bald Barren And Boobless

An honest and comical reflection of my journey through breast cancer

Tag: unheard

 The Valley continues

Valley 2 I did not sleep well at all, too much pain and heat for me to get much sleep. I was awake every hour or so, which adds to the exhaustion. Also, the nights are just so long and lonely.

Marc has always said for me to wake him, but one of us needs to be functioning, so I cant wake him all the time. Besides I am the daughter of a night shift worker – YOU DON’T WAKE UP A SLEEPING PERSON! I was trained well; sleep is far too precious.

I almost cry with gratitude when daylight comes. We spend a quiet day doing some light errands until early afternoon. I am so slow and sore. As we drive past people I see them smile and I think, “How can they?” “What is there to smile about?”

I  am so caught up in my own little toxic dark world. Even blinking seems too hard. My head and body feel thick, fuzzy and hot.   I have bone pain in my back, hips, legs and feet.

I had to give myself the injection again today. I didn’t count to three for quite as long as yesterday but I still took a while. It’s all the head games I play with myself.

So it’s back to bed for me. I hate the thought of it but if I had a tank it would be soooo empty right now.

I need to remember that this is temporary; this too shall pass. I am not stuck here, it is only for a short time and when I get through I will find myself, my energy and my smile again.

Yay! It’s Chemotherapy day!!! Part 3

broken heart3Did you know that the side effects from Chemotherapy can be worse than the actual disease it is treating? I know for me I am feeling at this present moment like I have been hit by a small truck, not yet a semi trailer but a small perhaps 3 tonne version.

We leave the Hospital and head for Westfield, which in hindsight, is not a great idea.  I have an invoice to take to Medicare to try and get some cash back. We have spent well over $50k so far on treatment and surgery so we need to keep on top of what we can recoup. With no insurance kicking in yet it is financially trying.

Just stop and think what would happen to you if tomorrow you were told you could work again and for an undefined time? Would you be prepared? This will be covered in depth in a future post but please take the time to consider this for your self.

I asked this of a lady recently how would she cope if she became sick and was not insured. She looked me in the eye and said “Oh but I don’t plan to get sick.” My response straight back at her was, “Neither did I!” Sadly I still don’t think she got it.

I get to Medicare which most of you know, is a very pleasant experience. I get my ticket find a seat and wait, and wait and wait. Finally, a young woman who appears to be perhaps 24 years old calls me up. She holds her hand out and drones at me, “How can I help,” however the tone was anything but helpful. I try to muster a smile whilst my stomach is fighting the toxin recently overtaking my system, my head is buzzing, my body buzzing too and a weird hot pain is raging all over.

I say “I have this invoice to claim on please.”  I hand her the invoice and she looks at it, scoffs and spits at me “This is not the right invoice I cannot help you” and then waves to the next person.  I am outraged, but the inner assault on my body prevents me from doing anything but skulk away.

Now, anyone who knows me knows this is not how I normally handle a situation like this. I would usually quite assertively stand up and say “Sorry but that is not helpful, please explain what the issue is here.”  I would then remain until it was resolved to my satisfaction as a tax paying Australian.  I walk slowly to find Marc with hot tears of anger and frustration welling up inside me, how dare she be so rude!

I find Marc and try to explain, he hugs me and says calmly, “We will sort it out love.”  He has all of my goodies from the chemist and then says, “So are we off to the Pet store?” I agree and say “If we get there and she is not in the window we will take that as a sign that she is not meant to be ours.”

We approach the pet store window where “our” little pup is meant to be, we look and all we can see is an empty glass enclosure. My heart tears open as it sinks in my chest…..

 

The journey begins

change-wordle

Monday 4th November 2013

So for the last 6-9 months I have been feeling like crap! I have had a really stressful year, have been waking feeling completely exhausted and I am always tired. My energy is low, everything is too hard, I get daily headaches, weird aches and pains and just feel like crap. I read an article on a plane recently that spoke about hypothyroidism so I went to see a naturopath on the 29.10.13. She said that I do have an under active thyroid so I need some specific tests to be ordered by my GP.

Today I saw my GP, I have spoken to her about how I feel before and she has always spoken about stress management.  I teach stress management so I am not saying I have nothing to learn but this is just too hard.  I simply don’t believe it is all due to stress.  However, I do feel like a whinger after speaking with my GP.  The way she looks at me when i reel off all of my symptoms.  I almost feel like minimising things so she just looks at me in a kinder way.

My GP appears to have her nose out of joint when I ask her for the blood tests requested by the Naturopath.  She says “but your thyroid levels are normal”.   I say “this was tested 12 months ago, “.   I also explain that this is not unusual with hypothyroidism which it is why it is commonly missed – she likes this even less and says “I will test your cholesterol”….. how helpful.  I even said I would pay for the tests and she refused to order them! I leave feeling deflated, unheard and like a hypochondriac.  I’m sure like thousands of other women who go to their Doctor with a group of weird symptoms and are told to “go home and rest”, or “take some timeout for yourself lovey”.

I call a girlfriend who is a nutritionist and she says “hey go to this clinic in the city, these guys work alongside naturopaths”, She also added, “what happened here is not good enough, you should be able to speak openly and honestly with your GP”.  I feel some what  empowered and make the call.  I have an appointment for the 8.11.13.  Hopefully then I will begin to get some answers.