Bald Barren And Boobless

An honest and comical reflection of my journey through breast cancer

Tag: sharing

Prep For Chemo Begins….

get-supportI had a better night’s sleep.  I woke okay with some aches and pains and really tight muscles.  I’m so sorry if it sounds like I’m whinging, but I’m really trying to give you a real picture of what this is like.  Not only for the benefit of someone going through this, but also for the people around that person to know exactly what it’s like.

I think a lot of people are like me and don’t really share with many people what this journey is really like.  A brave face is what they wear everyday.  Whilst this may help people in the short term, in the long-term everyone loses because you don’t get the true support and understanding that you need.

It’s also really unfair on the people in your world who are trying to support you but can’t when they don’t know the truth about your situation.

Today I had a really bad chemo brain.  It is a shocker.  I actually tried to lock the house with the car remote.  I stood there for such a long time pressing the button and wondering why the door would not lock.  When I realised what I was doing I just shook my head and walked away.

The day really slid downhill from there in terms of my brainpower.  I met a friend for coffee and had a  mentoring session that left me feeling more inspired.  After that I took the dog for a walk and some lovely friends from church came and visited.

I got an email from Business Chicks to say that they would like to run an article on my story.  I am really excited about this opportunity.  How awesome to be able to share with other business women about my experience.

How amazing to share my struggles and my story so that they at least can learn from my mistakes.  At the very least, encouraging women to ensure that they have health and income insurance in place.

It’s also Connect Group night tonight.  I am back in your arms Lord, being held in prayer is such as safe and beautiful place.  I begin to take the dexamphetamine again.  It’s time to prepare for the next round of chemo.  Yay!

The dexamphetamines kept me awake until 4:30 AM, as you can imagine I feel like I’ve been hit by a truck.  I think tomorrow is going to be a slow day.

Crucial conversations

goodbyeWhat 15 minutes has changed your life, what crucial conversation meant everything shifted? For me, a recent example was coming home from the hospital after having a routine scan to tell my Husband I have a lump in my breast.

I still remember the look on his face, scared but holding it together for my benefit. Why was this so scary for me? It was because my whole life I have lived under the shadow of breast cancer. My Mother was diagnosed at 39 years old when I was a new born. She has a mastectomy and went on Tamoxifen. A couple of years later when the Tamoxifen was stopped (as is usual with this treatment) she had car accident and they found a metastatic growth in her spine. She had radiation treatment.

A few years later, she was seeing her GP. She told her GP of a lump in the other breast, her GP talked it down and told her not too worry. Perhaps a missed opportunity for a crucial conversation or otherwise a crucial miss.

She persisted and a few months later found she had a second different, more aggressive cancer in her remaining breast. Again she had a mastectomy and began Tamoxifen for a third round. By the time this happened I was 17 and doing my HSC.

After this she slowly but surely developed metastases all over her body and fought the hard fight until she went to heaven in 2003. By this time the cancer was in her bones, liver, stomach and brain.

So I guess another opportunity for a crucial conversation was the last time I spoke to her. She was unconscious and had been for a couple of days. The Palliative care team had told us, any day now. I wanted so badly to be by her side when she passed but was called away on some urgent family business with my ex husband.

I wanted to ensure that she knew how I felt so I read to her what I was planning to say at her funeral. Some may say this is sad or macabre but I wanted her to know how I felt, not just for the rest of the world to know. I think so many times eulogies are filled with things our loved ones needed to know while alive.

So with lumps in my throat and tears streaming down my cheeks I read her the eulogy I had written. She squeezed my hand when I finished which was such a special thing for me, some acknowledgement. Another beautiful but painful crucial conversation albeit one way.

On the way back from my “emergency” I received a call to say she had passed away. I had missed her by 1 hour. I cried tears I thought were impossible to cry. I cursed my ex husband blaming him for pulling me away in another selfish act.

However in hindsight, this was how she wanted it. She had always said she did not wish to be a burden and wanted to be alone to die. I don’t think any of us understood this or believed it so we faithfully sat by her bedside hour after hour.

It was only when I was gone, one sister was in the bathroom and the other was called away to answer the door that she passed away. Then I thought, poor love, was just waiting for a peaceful moment to slip away.

Crucial conversations can occur anywhere and any time, ensure you are open and ready as you may only get one chance.