Bald Barren And Boobless

An honest and comical reflection of my journey through breast cancer

Tag: poor health

Day 3 post chemo – I have entered the valley of the shadow

valley of the shadow So as I have said, I feel like I have entered the valley of the shadow of death.   Don’t worry folks, I don’t plan on staying here. I have not slept at all well through the night. I am in so much pain I just cant get comfortable. My whole body hurts.

I’ve only felt something similar when I was involved in a head on collision many years ago and every part of my body felt bruised and battered. This is similar but with a toxicity like a 24 hour bug from hell.

The bone pain in my legs back and hips is unexplainable. My head is hot and fuzzy, my body is stiff and my entire digestive tract feels bloated and inflamed. Like my system is screaming at me “WHAT HAVE YOU DONE!!!”

I was in the kitchen trying to find something to eat as I feel weak but am scared to upset my system any more. Samuel my quirky gorgeous 12 year old son enters the kitchen and says “Ohh mum your hair has started to fall out!” In my own mind scream, “Not know I am so not ready.” The look on my face must have been priceless, as he soon tells me he is only joking. Oh kool, hah hah love, that’s so funny!!! NOT!

So now I feel paranoid as well as like I have been struck by the toxic avenger. It reaches 11am and I am required to give myself an injection. The injection is to protect my body from dropping too low in the blood count. The nurses showed me how to do it on the first chemo day. They give you the option to come in for 5 days and have it or you can do it yourself.

Guess what I chose? Yeah, don’t want to be a burden, I am far too practical as well, so how hard can it be? The actual injection itself is not hard, you stick yourself in the tummy and you push the syringe then you take it out, Simple!

I know what it feels like, sometimes when you get just the right angle you hardly feel it, its great. Other times you get the wrong angle, and it can really sting and burn. So here I sit counting “1, 2,   3”…nope. Again, “1, 2, 3”…nope. Again, “1, 2, 3”…nope. Now I am getting frustrated with myself, “Kylie JUST DO IT!!!!”

So I do. Funny, it’s nowhere near as bad as I think, a little sting but ok. Man it is such a battle of the mind! I feel slightly proud of my delayed bravery.

The day progresses and I just get worse; the toxic avenger has turned into a freight train that has run me over. Everything hurts; even blinking is hard. I fall into bed and stay there. All of the pain is horrendous, my head and body is hot and buzzing with toxicity. I pray for sleep, please come and swallow me into your peaceful embrace.

 

Yay! It’s Chemotherapy day!!! Part 1

ImageDid you know how toxic Chemotherapy is? Did you know that 9 out of 10 American Oncologists would refuse chemotherapy if they had cancer? That’s up to 91% — a huge percentage that clearly shines a light on the truth: chemotherapy kills. www.cureyourowncancer.org

I wake after a very broken sleep, and realise a sharp reality “Yay! It’s chemo day!!” I pack a bag of goodies; they tell you to take snacks, medication, questions and things to keep you busy. I took some healthy snacks, music, some books and a blanket so I was comfy.

On the way Marc shows me a picture of a puppy he saw in the pet store a few days ago, it is a mini pin (Miniature Pinscher or Doberman) just like our lovely old dog Benjamin. You don’t see them in pet stores very often. He captions the pic with “Please will you love me?” and sends it to the kids.

I think she (the pup) is gorgeous and immediately begin to want to get her and have her all for myself. I go into lengthy justifications as to why it would be a good idea as I will need company and someone/thing to love whilst recuperating, plus I have the time to train her. Yadda yadda – I’m sold…… Now to convince Marc.

We leave in the car towards a total unknown; the car ride is eerily quiet. I play one of my favourite songs by Kari Jobe called “Steady my Heart” with beautiful words about the challenges of life, and leaning onto our Almighty Comforter to get rest. She sings “I’m not gonna worry, I know that you’ve got me right inside the palm of your hand.”  I find my eyes welling up with the anxiety of today and the thankfulness I have that God is with me for every step.

We arrive and don’t wait for too long before our Oncology Nurse “Justin” takes us in to our armchair of destruction. Justin is really relaxed and lovely, he is very aware of how anxious we are and he did well to make us feel more comfortable. He explained everything, answering our enormous list of questions. We take some pictures of me with my new look, the ice gloves. This is to protect your fingernails from falling off due to the toxic effects of the treatment.

He inserts the Cannula and sets up the bag. He leaves me to relax and I begin to feel a headache coming on. I am trying not to imagine the toxin entering my body. My arm even begins to burn at the site of the cannula and up my arm.  I have been told to imagine it as healing light. However, I am struggling with this.  I feel fear erin to grip me.

Justin returns to put another bag up, I ask him what it is and he says, “Oh the treatment is about to start.” I’m am shocked and ask what has been entering my body already, he explains “ Only saline!!”

Oh my, the power of the mind! What a powerful lesson!  So as I am smacked between the eyes with my own over reaction I determine to settle in and get this first treatment done and done well. As the famous quote says : “Whether you think you can or you think you can’t you’re right.

What does Christmas mean to you?

Monday December 23rdlife is short quote

It’s funny how a cancer diagnosis can change your perspective. We are madly getting ready for Christmas getting the last few pressies for people. As you all know the shops are nuts at this time, people push and shove and I am super tender. Still going bra-less mostly so it helps sometimes to make some people back away and give way to me.

Marc and I are trying to working out what we will cook, it is only going to be small but I still want it to be special. Although I really need to manage my expectations around Christmas and my birthday, my lovely mum spoiled my sisters and I so much. So much so that many have paled in comparison. Like I don’t want much but to feel special. That may be with a thoughtful card or a little something that you know I would love.

In our family growing up Christmas was always huge, with the entire family and friends. It was noisy, fun, we all pitched in, it was full on. There would be upwards from 20 people, some we hadn’t seen in ages. My family is all very close and we would all slip back in where we left off even if it had been ages. I have 3 sisters who have all had 3 kids of there own and one who has 2 step children. All of which are part of the family! I now have one child and 2 stepchildren now and the family feels the same toward them. We have a “WELCOME ALL” policy that I love. I know it is a bit weird for the newbies for a while but mostly they come around.

I also LOVE giving presents and try so hard to get people what they really want and for it to be a surprise – not too many expectations hey. However, since both my parents went to heaven, we rarely all get together at Christmas. With growing families and the pressure of life, we don’t do it any more. Some of us have stepfamilies and ex husbands that grows the family tree and adds to the complexity of meeting every ones needs at such times. For some reason, when Mum and Dad were alive we all trekked across the country to be together, now we don’t and this makes me sad. However, I am a part of this problem too, life becomes overwhelming.

So I have my new family, (since marrying the wonderful Marc) which is much smaller than what I am used to at Christmas. There is always Marc and I, Alison and now Eliza and a varying number of kids. My step kids usually spend Christmas with their mum or if not they fly out that afternoon or the next day. Gran dad (Marc’s Dad) comes for lunch but is so elderly and in bad health that this is really hard to manage. This year my son Sam is with his Dad for Christmas, so it is very small. Moni will be here before she goes to her Mum’s then there is Marc, Alison, Gran dad Eliza and I. It will feel so quiet compared to the Christmases of my past.

I am trying to manage my expectations of the day, I want it to be special but I am also not up for much either, such a strange place to be. It’s funny how when life gets potentially ripped from you, the importance of such days seems to grow. There is a big lesson in this for me. I want to live each day like we may not have it again, without regrets and without holding back. I want appreciate all I have been blessed with whole-heartedly every day.

Life begins to move on

road w quote

After the Oncologist, my big sister arrives for a bit over a week. Her and her Husband fly in from interstate. This trip was planned before the diagnosis; we don’t get to see each other often so I did not wish to change it.

My big sister has many health problems of her own, she has been to hell and back and this continues on a daily basis. She is resilient and takes each day as it comes. Her husband is an amazing support and they have the most wonderful relationship. They have been married and divorced before and finally found each other. It is so lovely to see how they do married life together.

It is hard for all of my sisters having me diagnosed with breast cancer I don’t think anyone expected the youngest sister to be diagnosed. It brings up all of the questions around genetics and family history. It makes each of them think, “will it happen to me, when will my body defy me?” We don’t have great genes honestly. Cancer, heart disease, weird blood disorders. But in our favour we are strong and resilient.

We spend lots of time sitting about talking and reminiscing. My sister closest in age to me stays for the week to see her big sister too, and to help out me after surgery. So we laugh, we cry, we talk, we disagree, it is a big week.

It has been an interesting journey for my big sister as her illness is obvious as she is on oxygen 24 hours per day. She also needs to use a walker or wheel chair to be mobile as she is so weak and is so much pain. She cannot avoid but explain what is going on with her health.

However, for the moment I have blessed anonymity, which I am treasuring. Soon enough I will be ‘bald, barren and boobless’ and obviously look like something is not right so I will have ‘the looks’, the inevitable questions. So for now I am not keen to even bring up my health with people outside the inner circle.

As we catch up with some distant family members over the week, my sister talks about her health and is quite puzzled when I don’t bring mine up. Again it’s me making the most of this window of opportunity when my health does not need to be the foremost topic of conversation.

Particularly when you don’t know how different people respond. Some are supportive and encouraging (excellent!), while others can be fear mongering, can blame you and then of course there’s those who open with “oh yeah I knew someone who died from that last month.” That’s always a helpful conversation. No I don’t have enough of my own fear and doubts that I wrestle with every moment, please give me more!  Once I explain to my big sister why I don’t wish to tell people she understands, again different people different journey.

It’s a full week, my second oldest sister visits from the Hunter Valley, which is lovely. I haven’t seen her since the mastectomy. She is my sister who has also had Breast cancer, so I feel like she understands so much more. She’s been there, she knows the “what if’s” the mind games we play, the pain, the body image issues, the grieving for normality, the realisation of ones own mortality.

So it has been a big week, I am slowly recovering, the pain is lessening, I still cannot wear a bra with my soft form prosthesis for long. It’s just too painful. If we go out in public and I feel the need to wear a bra, I almost rip my bra off when I get home. Oh the sweet relief when I do that.

It makes me angry that I feel the need to conform and wear my prosthesis in public. But then again without it I get the looks and questions. I don’t want to have to deal with that, I am still coming to terms with what this means for me. I am sure it will all become easier in time.