Bald Barren And Boobless

An honest and comical reflection of my journey through breast cancer

Tag: fear of dying

Yay! It’s Chemotherapy day!!! Part 1

ImageDid you know how toxic Chemotherapy is? Did you know that 9 out of 10 American Oncologists would refuse chemotherapy if they had cancer? That’s up to 91% — a huge percentage that clearly shines a light on the truth: chemotherapy kills. www.cureyourowncancer.org

I wake after a very broken sleep, and realise a sharp reality “Yay! It’s chemo day!!” I pack a bag of goodies; they tell you to take snacks, medication, questions and things to keep you busy. I took some healthy snacks, music, some books and a blanket so I was comfy.

On the way Marc shows me a picture of a puppy he saw in the pet store a few days ago, it is a mini pin (Miniature Pinscher or Doberman) just like our lovely old dog Benjamin. You don’t see them in pet stores very often. He captions the pic with “Please will you love me?” and sends it to the kids.

I think she (the pup) is gorgeous and immediately begin to want to get her and have her all for myself. I go into lengthy justifications as to why it would be a good idea as I will need company and someone/thing to love whilst recuperating, plus I have the time to train her. Yadda yadda – I’m sold…… Now to convince Marc.

We leave in the car towards a total unknown; the car ride is eerily quiet. I play one of my favourite songs by Kari Jobe called “Steady my Heart” with beautiful words about the challenges of life, and leaning onto our Almighty Comforter to get rest. She sings “I’m not gonna worry, I know that you’ve got me right inside the palm of your hand.”  I find my eyes welling up with the anxiety of today and the thankfulness I have that God is with me for every step.

We arrive and don’t wait for too long before our Oncology Nurse “Justin” takes us in to our armchair of destruction. Justin is really relaxed and lovely, he is very aware of how anxious we are and he did well to make us feel more comfortable. He explained everything, answering our enormous list of questions. We take some pictures of me with my new look, the ice gloves. This is to protect your fingernails from falling off due to the toxic effects of the treatment.

He inserts the Cannula and sets up the bag. He leaves me to relax and I begin to feel a headache coming on. I am trying not to imagine the toxin entering my body. My arm even begins to burn at the site of the cannula and up my arm.  I have been told to imagine it as healing light. However, I am struggling with this.  I feel fear erin to grip me.

Justin returns to put another bag up, I ask him what it is and he says, “Oh the treatment is about to start.” I’m am shocked and ask what has been entering my body already, he explains “ Only saline!!”

Oh my, the power of the mind! What a powerful lesson!  So as I am smacked between the eyes with my own over reaction I determine to settle in and get this first treatment done and done well. As the famous quote says : “Whether you think you can or you think you can’t you’re right.

Beyond festivities of 2013 toward overwhelm

overwhelmSo 2013 is my first Christmas with Cancer personally. Due to my family history I have had cancer present and many Christmas celebrations just not in my body. I am trying to keep busy so as to distract myself I think.

It is such a fine line to walk when you need help as you are recovering, but are fiercely independent. It also gets very complicated when your family are so used to you just doing things that they don’t readily offer to help. This then requires me to ask! Something I do not do very well. It’s not that they wont help it just doesn’t occur to them, I suppose I have trained them well (not!).

Christmas comes and goes, it is pleasant and quiet. After Christmas we head up to the Hunter to see more of my family and to stay with some lovely close friends. We have a few days grace before Chemo starts. Something that is in my mind and I try desperately to block it out.

There are so many things weighing on my mind. Firstly, finances. We have an insurance policy in place but the analysis of my eligibility is taking a very long time. In the interim, I am not working and we are spending so much on treatment. Even with private cover we are at least tens of thousands out of pocket so far. That is also because I am doing the two-shoe shuffle using both medical and complimentary medicine. So between acupuncture, supplements, medicine, doctors appointments and surgery gaps it all adds up.

Other things weighing on my mind are the effects of Chemotherapy, what will it be like? I really have not idea what to expect here, how unwell will I be? Once I lose my hair I will no longer be able to go incognito, the game is up! How will my kids cope with a bald mum picking them up from school?

What about my mortality?  Although I do feel that I will get through this and be healed, I am still human and I do have doubts.  What if the cancer comes back?  What would I do?  What would my family do?  Am I ready for what that means?

The future is also weighing on my mind. Even if the cancer does not come back int he near future, how long will I feel like I do? So sore, fragile, emotionally knackered and physically tired. In some of the reading I’ve done some women never get over that. Will my capacity be different? Will I cope with full time crazy hours like I used to do? If not, how will I build a business that I have on my heart to build. I have a big message and a desire to share it, if anything that has only gotten stronger so things will need to change.

How is my family doing? They all seem ok but I know this dance you don’t want to upset the sick one so you keep it all inside. I did it my self for years with my Mum. I am not worried about my Husband we have been really open from the very start, almost offensively open. In fact, on the day I found out I had cancer I gave him an out. I said, “I don’t expect you to stay if you are not up for it.” Poor love was so offended that I didn’t believe in him. It was not that at all; more that I didn’t want to shackle him.

I also need to somehow keep the door open for my boy Samuel (or young man). I know he is scared that he may not have his Mum around and that I am his biggest fan, advocate, protector etc. Yes we have a wonderful blended family but the thought of losing me really frightens him. Yet as a big almost teenager he is trying to be tough and act as if all is well.

Don’t get me wrong I don’t want my family to be solemn and walk about sulking all day because of this, I just want us to be able to be real when we need to be. So I feel like it is my responsibility to create that environment. Now I just need to work out how……..

How important is faith?

faith 1 Faith is such an interesting word. It means “Confident belief in the truth, value, or trustworthiness of a person, idea, or thing. Or, a belief that does not rest on logical proof or material.

Now we all believe in something, whether it is ourselves, the medical system, our partners, friends or family and God or other spiritual belief systems. So you may believe;

“ I have cancer therefore I am going to die from it”.

” I will never get cancer ”

“ The Oncologist and medicine will cure me”

“ My family will always be there for me;” and many more varieties.

For me from the very beginning of being told I had cancer I felt no fear. Now this is a big thing, the idea of getting cancer before this has hands down been my single biggest fear.

However, sitting in front of the specialist and being told I had cancer I felt absolutely no fear. Sadness, loss, and confusion yes, but no fear! I am so amazed by this. However my faith always amazes me.

Now if you do not have a faith in God, please don’t leave me here. I am not a weirdo, but I do have a very close relationship with God aka Jesus. I only came to have this relationship around 10 years ago. I was not born into a Christian family and found this relationship whilst searching for what was missing for me, as an adult after my son was born.

Don’t worry, I am not preaching just filling in some background detail so you understand my perspective. I believe that God has a plan and purpose for my life (and for all of our lives). From the moment this diagnosis was thrust upon me I felt so strongly, “this will not take my life.” I honestly felt Protected by God. I don’t mean that He healed me instantly, but that by trusting Him, He will show me the way and that I am not on my own.

So for me, I put my faith in God, and I believe that I will be ok. Now for me this means that I still get treatment from Doctors and the medical system and that I support my body with complimentary medicine and healthy lifestyle. Through this journey I believe I will be ok.

So, answering my own question, faith is very important but just as important is knowing who or what you put your faith in. So no judgment either way, this journey is such a personal one, but I really feel compelled to share my journey with whoever is willing to read or listen. It is such a powerful question isn’t it, where, what and who do you put your faith in?

 

 

My first post surgery check

bottled_up_emotions_by_photog_roadThursday 5th December

I am due for my post surgical review with my breast surgeon today. The warm caring man pre surgery seems to be MIA today and I am faced with a very curt business like man, who doesn’t seem to give a crap.

He looks at drain says “it’s ok but you need antibiotics”. He says “You are healing well and your pathology was inconclusive, there was some lymph node involvement but we have decided to take a conservative approach” – This does not sit well with me, so the cancer travelled?  How long do I wait?  All of these fear driven thoughts are invading my mind with such speed I can’t stop them.  He says “best case scenario, treatment will just be tablet, and they need to shut down my ovaries”.  Oh cool, that sounds hunky dory.  Awesome, what was I afraid of……

The completely frustrating thing is I know that this means.  This means Tamoxifen and my Mum was on this, each time she stopped taking it, on doctors orders her cancer would come back stronger than ever….   This drug frightens the crap out of me. I hated this drug for years.  Each time my Mum’s cancer came back with a vengeance. I also know that this means ”hello menopause” and this is scary for me too, I am 41, I’m not ready for this. But from his mouth, “just take a pill you’ll be fine.”  He does not even mention the menopause word, I think this is so wrong.

As a woman how am I meant to prepare and decide what is best for me when I am not being told all of the information?  The consequences of each treatment regime should be fully explained, and if not by him then he should be saying that this person will fully explain this for me. But nope, “just pop a pill darl you’ll be right!”

I ask some questions about my scars, he says “what are you worried about, this will all be ripped apart and redone when you have the reconstruction,” and then he adds “are you still persisting with the other breast removal?”  I try to remain calm but I want to rip his head off.

Persisting! You tell me the cancer has travelled, you tell me you have decided to take a conservative approach, then you have the hide to ask me if I am going to take up your precious time with the removal of my other breast!  Only after both my Mum and sister had cancer come back in the other breast????  I need to take some slow deep breathes so I don’t lose it.

I explain to him that I will be persisting with a double mastectomy as soon as I have been given the clearance to do so. I pray to myself that I will hopefully feel more heard by the oncologist in a few days.

I leave feeling frustrated, worried and angry. Why do these doctors minimize this experience, he is effectively removing cutting or chemically killing all of the things that make me a woman and I should be happy?????

As I leave I ask to pay for today as every appointment costs, she says “oh this consult was free, but here is the gap”, she gives me an invoice for $2000 and says “can you pay now?”  Sorry lovely I have not worked for a month or more and there is no money like this lying around in my account. I ask to make a direct deposit when I get home, she is not happy but agrees.

I am to see the oncologist on Monday the 9th, it is a woman, this gives me some relief, perhaps I will feel a little more understood. I get home and am so angry I don’t know what to do with myself, I can’t express it in words, I want to run but I am far too sore.  Aha, chocolate!